Balancing Privacy with Data Sharing for Public Good

ConV2X 2023 CME Session

Authors

  • Lorenzo Cristofaro Partner, Panetta Law
  • Osama El-Hassan, PhD Health Informatics Specialist, Dubai Health Authority
  • Paul Barach, BSC, MD, MPH Professor, Thomas Jefferson University

DOI:

https://doi.org/10.30953/thmt.v9.481

Keywords:

data sharing, improved population health, individual privacy, innovation for public good, open data sharing, patient privacy, personal data regulation

Abstract

Governments and technology companies are increasingly collecting vast amounts of personal data, prompting investigations, and calls for stricter regulation to protect individual privacy. Despite these issues, socioeconomic demands for data sharing continue to rise. Data increasingly powers innovation, and needs to be used for public good, while protecting individual privacy. This is new terrain for policymaking, and requires a careful approach. Digitally savvy businesses are collecting data and deploying it to anticipate product demand and set prices, lowering costs, and outwitting more traditional competitors. This session explores the challenges of balancing citizen and patient privacy with open data sharing for public good, and improved population health.

Objectives
• Explore how open data can improved efficiencies and reduced costs
• Learn how increased transparency can increase accountability and lead to less corruption
• Consider how open data has the potential to bring people together who are working on similar issues to exchange ideas, findings, discuss challenges, and encourage data collaboration rather than competitiveness
• Appreciate the hazards and costs for incorrect use of data and missing data

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Published

2024-02-28

How to Cite

Cristofaro, L. ., El-Hassan, PhD, O., & Barach, BSC, MD, MPH, P. (2024). Balancing Privacy with Data Sharing for Public Good: ConV2X 2023 CME Session. Telehealth and Medicine Today, 9(1). https://doi.org/10.30953/thmt.v9.481

Issue

Section

Conference Presentations